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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Good luck Tina - try and get some more pain relief if you can - I'm taking Naproxen (pankiller and anti-inflammatory) as well as MTX and prednisolone (although I finsh that today!) and I've found a huge difference over the past 4 weeks. And for the nausaea try eating a couple of ginger nuts - even if they don't cure it, they taste sooo good! Keep positive and posting - Sylvia xx Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Sorry about spellng - the i on my keyboard is sufferng with sympathy RA! Sometmes it's fine and sometimes it sn't Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Tina
It is confusing. I've been taking oral steroids and I have also been told I can't take them with anti inflammatories. I am weaning myself off them at the moment. I am now taking 5mg every other day and then after two weeks of doing this I can stop them altogether. The days that I don't take steroids I can take anti inflammatories.
I've been on this forum now for nearly four years and I have seen how different consultants views on things vary so much. I have recently been told to up my folic acid from one a week to one everyday. I have read on here over and over again that you shouldn't take folic acid on MTX day. My consultant said it doesn't make any difference. Most people take MTX at night, I was told to take it first thing in the morning. Yes, very confusing indeed.
Paula x
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Rank: Advanced Member Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Re the folic acid - I take it every day except on the day I take MTX - I was told by the specialist nurse that this is because both the MTX and folic acid are absorbed in the same way (can't remember exact details), and it is preferable for the MTX to be absorbed rather than the folic acid, hence they recommend avoiding taking them both on the same day. Regarding when to take MTX, she advised taking it with my biggest meal of the day, which for me is in the evening Sylvia xx Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Member
Groups: Registered
Joined: 4/21/2012
Posts: 23
Location: Nottingham
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Hi Sylvia - love the idea of taking ginger nuts for the nausea - I will have to buy a pack and tell everyone they are medicinal lol
I also take folic acid one a day - my consultant just prescribed them every day so when I questioned it with the pharmacist I was told there is no clear evidence either for or against taking it on the same day as MTX. I therefore take my MTX in the morning (have never been advised about a good or bad time for taking them) and the folic acid with my evening meal.
I am currently being weaned off the Prednisolone (so that I can stop the calichew and stomach protector Loprazole (or something like that) - but they have said I will probably have to add something else with the MTX at my next visit to get the disease under control.
However I am due to go on holiday to Malaga on 7 July tho, so she has relented saying I can wait til after I get back before stopping the Prednisolone, so that I dont curse her whilst Im away lol (we laughed when she said this, but then when I told my daughter, she said - surely that means she knows the pain will go up further with the steroids stopped and nothing extra added to the MTX..... oh yeah, maybe the joke wasnt so funny!!!
Tina
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Tina Ginger nuts and crystalised ginger brilliant for nausea  Jackie x
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Rank: Advanced Member Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hi Tina - it sounds as though you and your consultant have got it all covered - have a lovely time away and I love your bright attitude to it all - a good laugh is worth any amount of pills!!!! Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member  Groups: Registered
Joined: 6/23/2012 Posts: 36
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Hi, Tina,
I too, am new to the forum, and found everyone so wonderful, I have had RA for almost all my life, 50 years, and so much easier in a way, although I was a keen ballet dancer, when I was diagnosed a a child. I do hope you get your drugs sorted out really soon, and try to keep active as possible. I send you all my good wishes for the future, keep writing.
Jennyxx
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Rank: Member
Groups: Registered
Joined: 4/21/2012
Posts: 23
Location: Nottingham
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Thanks Jenny,
Welcome to the site - I have had so much help and support from members on here, it has helped cheer me and stop me feeling so isolated. It is so good to speak to people that understand RA and are happy to share their stories, my partner still struggles to talk about it, so this is a great way for me to let of steam or get advice and keep cheerful - hope you find it useful too.
Tina
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Rank: Advanced Member
Groups: Registered
Joined: 5/22/2010
Posts: 51
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Hi Tina,Have you tried co-codamel pain killers.also when your joint(s) start to swell use a bag of peas (keep this in freezer just for your joints) not forgetting to wrap the peas in kitchen roll first.Getting a goodnights sleep really does help.Have you got hand splints off your doctor or nurse at the hospital.
Try these out they may work for you.Good luck.
Valerie-R
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Tina.
I late welcome from me. This site is great for friends, advice and moans, groans, and laughs.
I am Rose from Somerset diagnosed 2008. I am 58 married to Mike and 2 grown up children
and 1 Granddaughter aged 8.
I have tried many drugs from the anti inflams to start with down to mtx, leflu to humira
and recently infusions of rtx, last one being November last year. I was decided in May that
I may also have fibromyalgia. So started on Pregabalin on 18th June gradually increasing
the dosage. I still have anti inflam but I am sero RA so difficult to treat. It does does me
down as I still am sufferring so I really do not understand why it is taking so long to sort me
out. I had 11 nights in South of France last month and my joints and health were great
so I think the answer is to Move to warm Country, like Spain perhaps.
Anyway I think your Boss is way out of order. If he sufferred from RA he definately would
not be saying that to you. There is a booklet you can get from the RA helpline 'for your employer'
it is very good and hopefully your Boss will understand you more.
Keep posting
Rose
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Hello Tina, how are you feeling now, are you back from your hols yet. I wanted to say that I have always been as active as I can ( running marathons and hill walking ) I haven't been able to run a marathon but I have been able to walk and have always been told that being active is the best thing to do and I know there are days when it's not even possible to move far but don't give up just try to do as much as you can because it will keep up your mood and that is very important. By the way I also go to the Q.M.C I'm with Doc Gaywood I think he's great and I've met Doc Pande and I think she is very kind and thoughtful. Glenys.
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